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Fernández-Vigo JI, Burgos-Blasco B, Calvo-González C, Escobar MJ, Shi H, Jiménez-Santos M, Valverde-MegÃas A, Reche-Frutos J, López-Guajardo L, Donate-López J. Assessment of the perception of healthcare barriers and the impact of intravitreal injections on neovascular age-related macular degeneration. ARCHIVOS DE LA SOCIEDAD ESPANOLA DE OFTALMOLOGIA 2022; 97:198-204. [PMID: 35523466 DOI: 10.1016/j.oftale.2021.02.006] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 10/12/2020] [Accepted: 02/09/2021] [Indexed: 06/14/2023]
Abstract
AIM To evaluate the perception of barriers in healthcare and the impact of intravitreal injections in patients with neovascular age-related macular degeneration (nAMD). METHODS Cross-sectional study including 108 patients with nAMD in treatment with intravitreal injections. The patients answered a questionnaire with 26 questions (score from 1 to 5) divided in three sections: 1) the disease and its treatment with injections, 2) healthcare barriers and 3) new technologies. RESULTS The mean age was 80.4 ± 7.0 years and visual acuity (VA) was 75.2 ± 12.4 letters. The main barriers in healthcare were long waiting times (72%), followed by other comorbidities (10%). Some 63% of patients have to wait between 3 and 5 h to attend their clinical visit. Significant anxiety due to the injections (2.8 ± 1.3) was observed, being present in 71% of the cases the day before. A great fear of blindness and losing independence was observed (4.4 ± 0.9 and 4.3 ± 1.1), with no differences in relation to VA, age or sex (p ≥ 0.135). Moreover, 28% of the patients reported that it was quite or very difficult for them to attend the clinical visit, with 69% of the total showing great interest in having a diagnostic device at home. CONCLUSION The nAMD and its treatment represent a significant burden on patients, among whom there is a great fear of blindness and of losing their independence, the main barrier being the long waiting time for the clinical visit.
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Affiliation(s)
- J I Fernández-Vigo
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain; Centro Internacional de OftalmologÃa Avanzada, Madrid, Spain.
| | - B Burgos-Blasco
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - C Calvo-González
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - M J Escobar
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - H Shi
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - M Jiménez-Santos
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - A Valverde-MegÃas
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - J Reche-Frutos
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - L López-Guajardo
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
| | - J Donate-López
- Departamento de Retina, Servicio de OftalmologÃa, Hospital ClÃnico San Carlos, Instituto de Investigación Sanitaria (IdISSC), Madrid, Spain
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